top of page
Search

When the Truth Hurts: What Do You Say When Someone With Dementia Asks for Someone Who Has Passed Away?

  • Writer: Michael Dworshak
    Michael Dworshak
  • 6 days ago
  • 2 min read

 When the Truth Hurts: What Do You Say When Someone With Dementia Asks for Someone Who Has Passed Away?


One of the hardest moments for a family caregiver can be hearing a loved one with dementia ask:

“When is my brother coming over?”

But their brother passed away years ago.

Your first instinct may be to tell them the truth:

“Mom, we’ve talked about this. Your brother died years ago.”


But with dementia, something important can happen.

Your loved one may not be able to retain the information that their brother died. They may experience the loss as if they are hearing it for the first time—over and over again.

So every time you tell them he died, they may experience the grief all over again.


 Sometimes, the kindest response isn't correcting them.

Instead, you might say:


“You really miss your brother, don't you?”

Then listen.

You might say:

“He was very important to you.”

Or, if they're asking when he'll be coming:

“He's away right now, but let's sit down and have some coffee.”


Then redirect the conversation toward something comforting.


This approach is sometimes called therapeutic fibbing or compassionate communication.

The goal isn't to deceive someone for your own convenience.

The goal is to reduce distress, preserve dignity, and meet the person where they are in that moment.


Here are 3 tools caregivers can try:

1. Validate instead of correct.

Instead of:

 “No, that's not right.”

Try:

 “You sound like you're really worried about him.”


2. Redirect instead of arguing.

If they repeatedly ask the same question, you don't have to keep explaining the same painful answer.

Try:

 “Let's look at some pictures together.”

 “Would you like some coffee?”

 “Tell me about your brother.”


3. Follow the emotion, not necessarily the facts.

Sometimes the words aren't the real message.

“I want to go home” might mean:

“I don't feel safe.”

“Where's Mom?” might mean:

“I need someone to comfort me.”

“When is my husband coming?” might mean:

“I'm lonely.”

Listen for the feeling underneath the words.


And remember:

You don't have to win an argument with dementia.

Your loved one's reality may be different from yours.

Our job as caregivers isn't always to bring them back to our reality.

Sometimes our job is to enter theirs and make it a little safer.


Have you ever experienced a moment like this with someone you love?

What did you say?


Share your experience below. Another caregiver may be struggling with the exact same situation tonight.

 
 
 

Comments


bottom of page